IV Therapies For Mast Cell Disease & Related Conditions Resource List

Beginning IV therapies are initially overwhelming. Support from other patients with experience can be extremely beneficial in relieving some of the fears doctors without firsthand experience cannot. It helps clarify some of the uncertainties during the process.

I am one of the moderators in the Facebook group, IV Therapies For Mast Cell Disease + Related Conditions. The group was once focused primarily on a new intravenous treatment for Mast Cell Diseases known as the Continuous Diphenhydramine Infusion (CDI). It has since been altered to cover a broader spectrum of topics relating to all IV therapies for Mast Cell Disease and any related conditions (i.e. Ehlers Danlos Syndrome, Dysautonomia, Gastroparesis, autoimmune diseases, etc). This post is a collection of resources.

Central Line

Basics

Home Infusion

Safe Infusion Supplies/Medications For Mast Cell Disease

Lifestyle

 

Mast Cell Disease Treatment

Continuous Diphenhydramine Infusion (CDI)

Studies

Patient Experience

Tyrosine Kinase Inhibitor (TKI) With CDI Therapy

Studies

Patient Experience

Continuous Famotidine Infusion (CFI)

 

Treatment: Dysautonomia/POTS

IV Hydration

 

Parenteral Nutrition

As resource posts and videos become available, I will edit to list them here. Please be sure to join the Facebook group, IV Therapies For Mast Cell Disease + Related Conditions for more information!