• Educational Success Despite Chronic Illness

    As I enrolled in college courses for this upcoming term, I was informed that I will graduate with my bachelor’s degree in December 2019. Say whaa?! The thought is almost surreal and the fact that the timing is only a measly six-months delayed is practically a miracle. School is no…

  • My Safe Anesthesia Protocol For Mast Cell Activation Disorder

    “Never have surgery EVER again unless you are dying,” said the pediatric intensivist. The conversation took place after my third or fourth surgery, which inevitably ended in another crisis. His words were less than comforting. That is why I laid there, mouth open in horror, as an emergency room doctor…

  • Warrior Life Planner

    I’ve never been much of a planner kind of gal. As chronic illness took over, all of my plans went out of the window. My life had to change. I learned how to fly by the seat of my pants, so to speak, but my basic organizational skills suffered. The latter…

  • 9 Questions To Ask When Searching For An Understanding Doctor

    I fumble with the orange prescription bottle in my hand. In my state of perpetual weakness, I exert great force to outsmart the child-proof seal. “Take twice daily for itching,” reads the label on the compounded antihistamine. I had just given a big dissertation on my most distressing symptoms—dangerously high…

  • Why Touring Our Wedding Venue Brought Tears To My Eyes

    Envisioning their reflection in sparkling princess white, many girls fall asleep dreaming of their future wedding. They have chosen a color scheme, a cake topper, and have picked out five varieties of flowers before they even understand the meaning of marriage. I was no different imagining the man who would…

  • Sick of Being Sick on New Year’s

    From our spot behind the hospital window, my mother and I were the spectators of many firework shows. We celebrated various holidays while I was admitted to the pediatric ward in Florida. We were secluded from society…unless you count whatever sorry nurse dared enter the room lest we talk their…