• Why Touring Our Wedding Venue Brought Tears To My Eyes

    Envisioning their reflection in sparkling princess white, many girls fall asleep dreaming of their future wedding. They have chosen a color scheme, a cake topper, and have picked out five varieties of flowers before they even understand the meaning of marriage. I was no different imagining the man who would…

  • Sick of Being Sick on New Year’s

    From our spot behind the hospital window, my mother and I were the spectators of many firework shows. We celebrated various holidays while I was admitted to the pediatric ward in Florida. We were secluded from society…unless you count whatever sorry nurse dared enter the room lest we talk their…

  • Worthy of Celebration

    On Christmas Eve night, I was likely parked on the bench seat at my grandmother’s kitchen table. A wide variety of treats were always displayed on a platter near her fondue fountain. Candy, chopped fruit, and pound cake—I reveled in the chocolatey goodness. Mid-dip, my family would joke I was their…

  • Top 10 Tips for New Tubies

    Nutritional intervention via feeding tubes is a large portion of my daily routine. Contemplating life before bolus syringes, mixing formula, and finding plastic end caps scattered about the house is…almost bizarre. Such a statement would have been considered preposterous when my feeding tube was first placed and tubie life seemed downright…

  • Review: What Really Helps People With Chronic Pain

    I was provided with a copy of the What Really Helps People With Chronic Pain e-course for free by the course creator Esther Smith of Life in Slow Motion. I received this product for free in return for providing my honest and unbiased review. All opinions expressed are truthful and 100% my…

  • What Chronic Illness Has Taught Me This Thanksgiving

    Thankful. Grateful. Blessed. Every Thanksgiving, I post about thankfulness. I have a lot to be thankful for. I have a loving family, access to medical care, a roof over my head, and the means to an education. I have clothes on my back (my mother would argue too many), gadgets for…

  • Hiding From Your Health Is Never A Good Idea

    If you were to ask most people if they cared about being healthy, they would, in all likelihood, say yes. After all, who wouldn’t want to be as healthy as they possibly could? Whether you’re in perfect health or you suffer from chronic or long-term conditions, trying to stay as…

  • To The Doctors Too Scared To Treat Me

    To The Doctors Too Scared To Treat Me, You attempt to fit me into a box—the box you learned of in medical school. It’s disguised under fancy medical terms much like you hide behind your white coat and wealth of knowledge. The box holds a diagnosis. A rigid set of criteria…

  • A Transformative Encounter: Intussusception and Ehlers Danlos Syndrome

    Moaning in pain, I cried, “this isn’t fair!” The pulse ox monitor in the cardiac Intensive Care Unit wailed in concurrence. Earlier that day, obstruction symptoms had morphed into signs of shock. Although reluctant, I earned another lights and sirens ride to the hospital. As the paramedics made numerous failed attempts…

  • I SHAT OUT MY INTESTINE: C.Diff Treatment With Mast Cell Disease

    Looking into the bedpan, a seasoned nurse of over forty years furrowed her brow. She scoured the room for a tool to carefully place the specimen in a sterile cup reserved for the physician. Judging by her troubled expression, my nurse was obviously trying to disguise her true concern. Neither of…