• Top 10 Tips for New Tubies

    Nutritional intervention via feeding tubes is a large portion of my daily routine. Contemplating life before bolus syringes, mixing formula, and finding plastic end caps scattered about the house is…almost bizarre. Such a statement would have been considered preposterous when my feeding tube was first placed and tubie life seemed downright…

  • Review: What Really Helps People With Chronic Pain

    I was provided with a copy of the What Really Helps People With Chronic Pain e-course for free by the course creator Esther Smith of Life in Slow Motion. I received this product for free in return for providing my honest and unbiased review. All opinions expressed are truthful and 100% my…

  • What Chronic Illness Has Taught Me This Thanksgiving

    Thankful. Grateful. Blessed. Every Thanksgiving, I post about thankfulness. I have a lot to be thankful for. I have a loving family, access to medical care, a roof over my head, and the means to an education. I have clothes on my back (my mother would argue too many), gadgets for…

  • Hiding From Your Health Is Never A Good Idea

    If you were to ask most people if they cared about being healthy, they would, in all likelihood, say yes. After all, who wouldn’t want to be as healthy as they possibly could? Whether you’re in perfect health or you suffer from chronic or long-term conditions, trying to stay as…

  • To The Doctors Too Scared To Treat Me

    To The Doctors Too Scared To Treat Me, You attempt to fit me into a box—the box you learned of in medical school. It’s disguised under fancy medical terms much like you hide behind your white coat and wealth of knowledge. The box holds a diagnosis. A rigid set of criteria…

  • A Transformative Encounter: Intussusception and Ehlers Danlos Syndrome

    Moaning in pain, I cried, “this isn’t fair!” The pulse ox monitor in the cardiac Intensive Care Unit wailed in concurrence. Earlier that day, obstruction symptoms had morphed into signs of shock. Although reluctant, I earned another lights and sirens ride to the hospital. As the paramedics made numerous failed attempts…

  • I SHAT OUT MY INTESTINE: C.Diff Treatment With Mast Cell Disease

    Looking into the bedpan, a seasoned nurse of over forty years furrowed her brow. She scoured the room for a tool to carefully place the specimen in a sterile cup reserved for the physician. Judging by her troubled expression, my nurse was obviously trying to disguise her true concern. Neither of…

  • Diagnosing and Managing Dysautonomia With Blood Pressure Monitoring

     This post on blood pressure monitoring is sponsored by Aeroflow Healthcare in collaboration with the Chronic Illness Bloggers network. All opinions remain my own and were not influenced by the sponsor. Strapped to a table, the nurses assistant pressed a button to initiate the incline. She noted my legs, tinged…

  • I Lost My Colon To Ehlers Danlos: Colectomy & Intestinal Volvulus

    On September 21, 2018, I was taken to the emergency room via ambulance. The paramedics were agonizingly slow. The vehicle’s tires made contact with the contour of the asphalt and each divot induced a tormented groan. My family trailed closely behind. We did not realize it then, but I would lose…

  • Scared Little Girl

    The beige leather couch in my old Florida living room made contact with my skin. As it did, it sent my nerves into a painful state of misfiring. Beside me was a plate containing a small fillet of tilapia and butter noodles. The bland meal was my mom’s desperate plea…